From a dark room, Anil van der Zee grew into an important voice for ME patients, royal honor for Amsterdam resident

Anil van der Zee, a former ballet dancer who developed ME after contracting a virus in 2007, has received a royal honor in recognition of his advocacy work for patients suffering from ME and other post-acute infectious illnesses. Due to the severity of his condition, which leaves him sensitive to light, sound, and physical presence, the ceremony took place in the darkened room of his home in IJburg. Amsterdam Mayor Femke Halsema adjusted her attire and demeanor to accommodate his health needs during the private event.

Despite being unable to leave his home for the past two years, Van der Zee has become a prominent voice for the patient community. He works as a representative, collaborating on scientific research, sharing information via social media, and producing documentaries to raise awareness. His nomination for the award was supported by scientists and patient advocacy groups who praised his dedication. Van der Zee, who describes his illness as a prison, maintains that his efforts are a form of teamwork and hopes for a future where he can lead a normal life.